I was born with a cleft lip and palate. Here's a picture of me at about 4 weeks where you can see it up close:
On July 19th, Mom woke me up at 3:15. I'd been trying to sleep in longer, so I thought it was kind of strange, but I never turn down a good meal so I ate it right up. Then Daddy came and woke me up at 5:15. I figured something strange was going on and I hoped it was something fun. Then they took me back to that big brick building where we stayed when I was born. We waited a long, long time. Mom says that's because they rescheduled my surgery from 7:30 to 9:30, but all I know is that I was getting really really hungry and no one was doing anything about it. I cried and tried to let them know, but they wouldn't do anything, so I just gave up and went back to sleep. Here we are waiting:
Here I am in the weird gown they put on backwards. It had pictures of rocket ships on it.
All the sudden Daddy gave me to this guy:
The next thing I knew I was waking up and my mouth felt all funny. Mom and Dad weren't anywhere around until these two ladies took me upstairs. I had my very own room with a crib that Mom said kind of looked like a jail cell and Dad said looked like a bear trap.
Mom and Dad were saying I looked a lot different and kind of swollen. I felt so out of it, I just slept a lot. My grandmas and my Grandpa Harry came to visit, along with my cousin Elliott, my Aunt Merlaine, my Aunt Janelle, Shelley, and some other people too.
I can't move my arms and they wrap me up tight at night. I'd just like to touch my face where it feels funny, but I can't reach it no matter how hard I try.
Eating's kind of hard and they give me some bad tasting medicine, but mostly it's OK. The nurses were really nice and Mom stayed the night with me. I got to go back home the next day and Mom made me a special "nest" to sleep in my little crib. Here I am on my way home in my car seat:
I heard them talking about another surgery next year -- how far away is a year? I hope it's a long time...
Bringing Home a Guest Post
4 years ago